Citizens should remain owners of their genetic data and become stockholders of their genomic utilisation and commercialisation. Gene.coop is a cooperative institution that provides a legal frame for the citizens to remain owners of their genetic data during the whole process of its monetisation.
Developed by: Lucas Evers, Miha Turšič, Sabine Wildevuur, Pieter van Boheemen, Wieke Betten Roland van Dierendonck and Federico Muffatto
When: 2017 – current
Where: Amsterdam, the Netherlands
Main actors involved: Designers, researchers, citizens that want to sequence their genetic material, artists.
Topics: Genetics, Bioethics, Personal Data Rights
Photo from: https://waag.org/en/project/gene-coop